Thank you for this and especially the reference to "terminal agitation" which no one ever explained to me.
I had the experience of both home and facility hospice care for my father and mother respectively. My experience with my father mirrors yours and reading this brought back the memories of 8 years ago. Being ill prepared for what occurred brought anger and frustration with the services at a time where compassion for my father was most important.
So, when my mother reached that stage I was convinced that facility hospice care was better. My mother didn't experience the agitation, but I can't say the frustration was a whole lot less. It comes down to quality of help, empathy for the patient and caregiver, consistency of actions and explanations in both scenarios. Caregiving to a loved one who is passing is something you're not prepared for.
Comments
Thank you for this and especially the reference to "terminal agitation" which no one ever explained to me. I had the experience of both home and facility hospice care for my father and mother respectively. My experience with my father mirrors yours and reading this brought back the memories of 8 years ago. Being ill prepared for what occurred brought anger and frustration with the services at a time where compassion for my father was most important. So, when my mother reached that stage I was convinced that facility hospice care was better. My mother didn't experience the agitation, but I can't say the frustration was a whole lot less. It comes down to quality of help, empathy for the patient and caregiver, consistency of actions and explanations in both scenarios. Caregiving to a loved one who is passing is something you're not prepared for.
Post: Dying at Home
Link to comment from August 27, 2023