We have a profoundly disabled 40-year-old son with blinding schizophrenia. His medication regime and health care needs are overwhelming and I need to get help with it all, as I'm 67 and starting to need help myself. We do not have any close friends or relatives who might be able to help with him. We are moving to an area where he will at least have some cousins, although we're unsure how much they can really help him. He needs to be in a 24 x 7 care facility. We had set up a trust, along with a follow-on special needs trust. Our executor died, and when we tried contacting the trust administrator, discovered they had gone out of business. Then we consulted with another special needs attorney, and he told us the plan we had set up did not actually apply to our son. A trusted elderly friend suggested we need to set up a better plan with financial advisors. We are flumoxed by this, as we always thought that lawyers would oversee a very well-funded (for now at least, unless we have some sort of catastrophe) trust for our son & assign people to care for him. Now we are unsure what to do. Any advice? Please do not tell me to go to NAMI as my son's needs are not addressed by this group.
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We have a profoundly disabled 40-year-old son with blinding schizophrenia. His medication regime and health care needs are overwhelming and I need to get help with it all, as I'm 67 and starting to need help myself. We do not have any close friends or relatives who might be able to help with him. We are moving to an area where he will at least have some cousins, although we're unsure how much they can really help him. He needs to be in a 24 x 7 care facility. We had set up a trust, along with a follow-on special needs trust. Our executor died, and when we tried contacting the trust administrator, discovered they had gone out of business. Then we consulted with another special needs attorney, and he told us the plan we had set up did not actually apply to our son. A trusted elderly friend suggested we need to set up a better plan with financial advisors. We are flumoxed by this, as we always thought that lawyers would oversee a very well-funded (for now at least, unless we have some sort of catastrophe) trust for our son & assign people to care for him. Now we are unsure what to do. Any advice? Please do not tell me to go to NAMI as my son's needs are not addressed by this group.
Post: Cat’s in the Cradle
Link to comment from July 12, 2024